Primary Lymphoedema

 

Lymphoedema is a chronic (long-term) condition that causes swelling in the body's tissues. Primary lymphoedema is caused by a developmental abnormality of the lymphatic system due to a genetic fault.  It can affect any part of the body, but usually develops in the arms or legs.  Lymphoedema especially primary lymphoedema often takes several years to get a diagnosis whereas cancer related lymphoedema is diagnosed quickly because the patient is in the system.  Primary lymphoedema is not just one disease, scroll down to the posters.

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It is intolerable that in 2023, doctors are still unable to correctly diagnose lymphoedema. Be ready to hear that you are overweight. We are aware of the significance of maintaining a healthy weight, yet it seems absurd to dismiss a patient's concerns about a swollen limb with a blanket response.

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Lymphoedema signs and symptoms can include painful, heaviness, and trouble moving afflected body parts. Members of the L-W-O Community support group have also mentioned the following symptoms:

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• Fatigue

• Feeling as if legs feet are going to burst

• Inflammation

• Joint Issues

• Peripheral Neuropathy due to the pressure of the lymphoedema on nerve endings

• Pins & Needles

• Restless Leg Syndrome

 

If lymphoedema is not treated, it will get worse. If a swelling does not go away, please consult your doctor. If you are a patient with a swollen limb, please be persistent.

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Primary lymphoedema - that developed at birth or shortly after puberty and is caused by faulty genes or missing genes.

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